making it fun!

This afternoon and evening have been quite light seizure wise.... which means Aggie for the first time had the energy to cause a little trouble! She is just getting sick of this room, sick of her bed, sick of being attached to all those wires!

Here's Aggie doing crafts- her bumble bee is hanging on the wall by the TV so she can see it!

One of the nurses gave Cruious George a "silly hat" so that he could look like Aggie! I thank God for the medical professionals who work every day in this place of sadness and still are able to find ways to bring pieces of joy to the kids here!

Here's Aggie teasing her daddy- calling him the "big bad wolf." And I can't tell you how many times Aggie has said to me and others "Guess what?" What? "CHICKEN BUTT! hahahahahaha!" Leave it to Aggie to make a party wherever she is!

Aggie was supposed to have her PET scan today, but there was some confusion with the scheduling so she will have it tomorrow. She had her neuro-psych consult today so that can establish some sort of baseline to compare with however she is six months post surgery. They interviewed tired and pathetic Aggie (not to mention Aggie low on sleep and high on seizures) but that's the one we had to work with at the moment!

Tonight I am on the night shift at the hospital with Aggie. Tomorrow morning she will have to fast for her PET scan at noon. We are hoping to be discharged after that. She will be so relieved to get those things off her head! We will likely return to Michigan for the weekend and come back for surgery- but we probably will not know the actual date until Tuesday!

It looks like this will be a "fair week" we will never forget- though we won't be spending it at the fair!