Friday update

Yesterday was another hard day, but better than the day before. She had to wait until 3 pm for her MRI. That made just about two days with no food and very little drink. Add to that some steroids (for inflammation), sedatives and the side effects... and you have one scowly little girl! Around 230 she just wanted mommy snuggles (she had strong opinions about exactly where I put my head, where I put each hand, and demanded that keep my eyes closed too.) She finally fell asleep right before they came to get her for the MRI. I asked patient transport if I could just stay in bed with her- so we rode together down to radiology! (Going down an elevator in bed is a very strange sensation!) She tried in vain to shoo everyone she saw out of the room and kept begging to play her computer games. They gave her some meds to calm her (again) and she finally gave up- saying "FINE mommy. I'll just never never never do the cake game again. Never never again." She fell asleep, but every few minutes woke up saying "never never never again."



It is nice to have Lorraine here. This is them watching Tom and Jerry and having Popsicles together. The smile is still forced... but it is a smile!

The nurses are so great here! This is Lorraine learning how to put the leads on her sister! (for monitoring heart, lungs, etc)

Aggie got moved out of ICU around 730 last night, down to a pediatric floor (a private room with more space, fewer tubes, and slightly less noise.) They let Lorraine ride in the bed with her to her new room too!

Of course they had to check her vitals again and get her all reattached to the monitors down there. She was SO ready for bed, but it seemed like the nurses kept needing to do just one more thing... I finally left around 930- I told her I was going back to the room to get a craft we could do together tomorrow (she had asked me to do crafts earlier in the day.) She said, "No mommy, I don't want to you go. You'll just have to do a craft ALL by YOURSELF. Humph."

Before long our feisty little girl seemed to settle down to sleep. Just when the nurse and Josh let their guard down, she sat straight up in bed and ripped the IV port out of her ankle. What followed will probably be known by the nurses and all the patients on the floor as THE GREAT IV WAR OF 2009. Josh called me around 11pm hoping my voice would help soothe her out of hysterics. It eventually did, and she slept the rest of the night.

The neurosurgeon posse came in early this morning and removed her head wrap. Her hair is matted and gross, but it is still there! We are happy they didn't have to shave much of her head!

And now, here's the picture you've all been waiting for....

Lorraine sure went white this morning when she saw this! But it's really not too bad considering what they did!

She got out of bed, got cleaned up and dressed, and is now watching a movie with her sister. She is really tired and glassy-eyed, so we keep watching those eyes and thinking we just saw a seizure... but so far, not a single one!