Giving Thanks (inspired by)


Thanks be to God, Father, Son and Spirit, for the abundance of good things he pours on His children.
We are but few, but His blessings are many.

Tuesday, July 21, 2009

back home again!

It is SO nice to be home! TO sleep in our own beds, to smell the flowers and the cows instead of the fumes of the city! We were welcomed home with signs, balloons, and gifts of all kinds- it is great to be so loved and missed!

It is now 830am and my house is quiet... is this what normal homes are like? Obviously Marcus is still away (so is Seth)- the other kids are actually sleeping in!

Aggie is still doing great. Yesterday she and Lorraine were running and playing, dancing, even jumping on the beds (until I caught them that is!) We all kind of cringe to see her so active with that big scar on her head, but she hasn't complained about it at all!

Still no seizures so far.... though I can't say that means the anxiety is gone. Actually it takes several months of seizure freedom, followed by a normal EEG, to say she is really cured of epilepsy. (They think it is 65-70% likely in her case) Of course we hope and pray that the tumor was the culprit, but it may have been just one factor. If her seizures do return however, chances are better that they will be controllable by medicine now that the tumor is out.

Regardless, she has greatly improved, and we are definitely enjoying these seizure- free days! The boys will return at the end of the week with Grammy and Bump (we wanted to give her a few more days to recover before bringing THAT kind of energy into this house!) Lorraine is back home and we are enjoying a visit from my parents until tomorrow.

We met another for year old with epilepsy at the hospital- when he was a baby his parents were told he would never get out of a crib, never walk or go to school or play like a normal child. These parents researched everything, and traveled several days to meet with the best surgeon on the planet (the one Aggie had) and had his temporal lobe removed. He is now doing fantastic, only a little bit behind developmentally, but otherwise tremendously improved. When we were checking out of the Ronald McDonald house the other day, the manager told me that a new family had just checked in: they have four children under the age of six- three with epilepsy. And we thought we had it rough! But Cleveland is a place of miracles... I pray they find theirs too!

1 comment:

Jeni said...

So, so, SO wonderful to hear!!!!! I'll keep praying she stays seizure free!!!!