short Aggie update

Aggie's doctor is consulting with an epilepsy center today to see if he can get her in before July 15. (possibly Cleveland instead of Mayo if she can be seen sooner.) Meanwhile we are stopping her fourth med (the one that made her act drunk and did not help the seizures), increasing her third med and holding steady on the others. He said he suspects she will fail this med also as it has not even touched the seizures yet... but we still have to give it a good try (most docs will not even consider surgery if you have not yet tried enough medicines.) We hope to hear about Cleveland / Mayo tomorrow.


It is so nice to have the boys back! What a happy reunion we had on friday! Though I must say things are a LOT crazier with all the kids around. And if there happens to be a tiny moment of calm Marcus is sure to stir things up by, say, smacking Eldon on the head and then running away laughing, or shaking baby powder all over his head and my bedroom! (Note to self: the kids do not take scolding seriously when you are taking pictures at the same time!!!)

But today is a good day- though I think my standard for 'good days' are different than most people. What I mean by that is 1. Aggie has not stopped breathing today AND 2. all the elevators we rode in today WORKED!